Back to Chapter and Network Home Page Meet our Chapter Officers  Dan Makanoff – President. Dan is an Operations Director with Computer Sciences Corporation and has been a resident of Cherry Hill, NJ for the past 17 years. He is affected with Marfan Syndrome and had aortic surgery in 2003. He has been a member of the NMF since 1981.
 Annette Makanoff – Vice President. Annette's husband and two sons are all affected with Marfan Syndrome. She has participated in numerous NMF fundraising events and recently was the volunteer coordinator for the 2006 NMF annual conference in Philadelphia. She also worked on PennJersey Chapter fundraising events including Masquerade Madness and RENT.
Myra Pomponio – Treasurer. Myra has two children. Her oldest was diagnosed with Marfan at two. She became involved with the NMF in order to feel that she was doing something to help her daughter. Myra has been married for ten years to Mickey and lives in Jackson, NJ.  Judy Richter – Secretary. Judy is married to Doug Richeter. They have three daughters. The youngest daughter has Marfan Syndrome. Judy is a pediatric occupational therapist working for Virtua Early Intervention of Burlington County. She also is a certified yoga instructor and enjoys singing in her synagogue choir as a mezzo soprano.
Doug Richter – Member at Large. Doug is a cardiologist with Cooper University Hospital and has Marfan syndrome himself. Doug had aortic and cardiac valve surgery in 2008. He has also had eye and lung surgery. Doug has presented educational programs on Marfan Syndrome to South Jersey school nurses and West Chester University Physical Education students.  Beth Brobst – Member at Large. Beth has lived and worked in Mercer County for the past 20 years. She has two daughters, Cara and Allison. Both Beth and Allison are affected by Marfan Syndrome. Beth had aortic replacement surgery as well as lens implants in both eyes. She is very active in the community and has volunteered in many capacities with the PennJersey chapter.
Joanne Hall – Member at Large. Joanne is affected by the Marfan Syndrome. She is married to Peyton Hall and enjoys bicycling, bird watching and the beach. She is a safety professional who works as a consultant for municipal governments in southern New Jersey and enjoys working with the NMF chapter. Contact Information Contact:
Dan Makanoff
(856) 751-1796
dmakanoff@comcast.net Description of the Group
The PennJersey Chapter is dedicated to raising awareness of Marfan Syndrome and related disorders in Southeastern Pennsylvania, Southern New Jersey and Northern Delaware. With over 1100 members and several Local Network Groups, the chapter’s focus is on fundraising, education and support. Upcoming Meetings and Events
October 23, 2010 - Monte Carlo Madness Casino Night
7pm - 11pm at Aloft Hotel, 558 Fellowship Road, Mt. Laurel, NJ 08054
Dress is business casual. Click here for ticket information.
Donations are being sought to use as raffle prizes. Program ads are also available. Contact Annette Makanoff at dmakanoff@comcast.net or Myra Pomponio at mickisgl@aol.com for more info about prize donations and program ads. Announcements
Chapter News
In order to improve communications with all of our members we have initiated a PennJersey Chapter newsletter. The newsletter will be physically mailed to those members who do not have email or internet access. Members who do have email will receive a short message with a link to this web page. We plan to produce the newsletter on a quarterly basis. Please let us know if you have comments or suggestions or if you have information for future newsletters. If you receive the newsletter by mail and you have an e-mail address, please let us know so you won't miss any email notices and we can reduce our postage costs. Download the PennJersey News - Summer 2010 Download the PennJersey News - Winter 2009 Download the PennJersey News - Summer 2008 Download the PennJersey News - Spring 2008 Download the PennJersey News - Winter 2008 Download the PennJersey News - Fall 2007 Recent Events Central Jersey Tall Friends Club "Dance for Marfan" was held on April 10, 2010 at the Breakers Hotel in Spring Lake, NJ. Tall clubs, International members from several states (even as far away as Chicago), as well as Nancy and Frank Cardenas and Dan and Annette Makanoff (all members of the PennJersey Chapter), attended to help raise money for the NMF. Many thanks go to all the hard work that the Tall Club members did to make this event a success. Our chapter received a check for $500 from them as a donation from dance proceeds. 
The Broadway musical, RENT, which played at the Academy of Music in Philadelphia on Feb. 3-8, 2009 provided our Chapter with a great awareness and fundraising opportunity. There were 8 shows, all of which had 3-5 volunteers present to provide information and take donations from the attendees. After 6 of the shows, Anthony Rapp, one of the actors who also was in the original cast of RENT and knew Jonathan Larson, gave a short curtain call speech about Marfan Syndrome and the NMF. Because of the speech and the central location of our table, we raised over $10,000 for the NMF. Many thanks go to our volunteers who gave their time to help out. They are: Hannah Baker, Daisy Makanoff, Sarah Sebton, Pacita and Athos Ikonomou, Jerry Rothkoff, Sandy Rothkoff, Liza Rothkoff, Julia Rothkoff, Donald Weiss, Emily Weiss, Beth Brobst, David Makanoff, Nathan Makanoff, Annette Makanoff and Dan Makanoff. Special thanks go to our friends at the Central Jersey Tall Friends Club - Rita Bliden, Karen Brown, Conant Atwood, Tom Converse and Walt Bottomley, who came from quite a distance to help us out on the Sunday afternoon performance. | |  | |
The Second Annual Family Bowling Party was held on Sunday, Feb. 22, 2009 at the Playdrome Bowl in Cherry Hill, NJ. 19 adults, teens and kids attended and enjoyed 2 hours of bowling, pizza, soda and snacks. Thanks go to Beth Brobst for managing the RSVPs and to Myra Pompino for bringing the snacks. Attendees included the Ikonomou’s, the Pompino’s, the Slapinsky’s and the Makanoff’s.
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