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Archived Press Releases

 

 07.22.08 The NMF Mourns the Loss of Dr. Victor McKusick

06.09.08 Children’s Hospital Boston and Brigham and Women’s Hospital to Host 24th Annual National Marfan Foundation Conference, July 10-13, 2008

05.08.08 Old Drug Offers New Hope, segment on National Public Radio

04.30.08 Heartworks Gala Raises $1 Million for NMF Programs

04.01.08 National Marfan Foundation Benefit to be Held on April 17 at Cipriani 42nd Street

06.19.07 Stanford University School of Medicine to Host 23rd Annual National Marfan Foundation Conference, July 12-15, 2007

05.21.07 Heartworks Gala Raises $1.1 Million for NMF

05.21.07 New Resource for Nurses to Recognize Aortic Dissection in Emergency Situation

04.03.07 Ann Reinking to be Honored at National Marfan Foundation Benefit on April 30

01.24.07 Breaking News: Losartan Has Impact on Muscle Wasting in Mice with Marfan Syndrome and Muscle Degeneration in Mice with Duchenne Muscular Dystrophy

12.18.06 National Marfan Foundation Offers New Booklet for Teens with Marfan Syndrome

10.02.06 Aretha Franklin to Perform in New York City

03.15.06 NMF HeARTworks planned for April 18

01.11.06 Nominations Sought for 25th Anniversary Volunteer Recognitions

12.27.05 NMF Mourns the Loss of its Honorary Co-Chair, Vincent Schiavelli

10.26.05 Marfan Syndrome Community Benefits from the Legacy of Jonathan Larson, RENT Playwright

08.19.05 Jonathan Larson, the Marfan Syndrome and the NMF’s Emergency Medicine Campaign

07.13.05 NMF to Partner with Barnes Jewish Hospital to Host 21st Annual NMF Conference

07.12.05 www.marfan.org receives a 'Webby Worthy' Distinction

10.01.04 NHLBI Approves National Registry of Patients with Aortic Dissection: People with the Marfan Syndrome will be a Focus

05.10.04 New Brochure Addresses Obstetric Issues Related to the Marfan Syndrome

09.29.04 McKusick, Dietz Honored

09.10.04 Ritter lawsuit once again raises concerns about proper diagnosis of Aortic Dissection

06.09.04 Cedars-Sinai Medical Center to Host 20th Annual NMF Conference, July 7-10, 2004

02.02.04 National Marfan Foundation Launches New Web Site Offering Easy-to-Access Information on the Marfan      Syndrome for Medical Professionals and Lay People

12.03.03 National Marfan Foundation Opens New Port Washington, NY, Headquarters

12.03.03 National Marfan Foundation, Port Washington, Home to First Permanent Positive Exposure Display on Long Island

07.12.03 Loyola University Health System to Host 19th Annual National Marfan Foundation Conference, July 9-12, 2003

01.17.03 New Study Reveals Dramatic Increase in Life Expectancy for People With Marfan Syndrome

10.04.01 TV Tragedy on 'ER' Too Often Imitates Reality: National Marfan Foundation Working to Save Lives Otherwise Lost in Emergency Departments

 
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