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Emergency Medicine Campaign Kit
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The Emergency Medicine Campaign was developed in cooperation with the New York State Department of Health to provide medical professionals with information about the emergency diagnosis and treatment of aortic dissection. The goal is to reduce the number of preventable tragedies that result from this life-threatening condition.
The NMF reaches out to emergency medical professionals by: - Promoting the Campaign at medical conferences for emergency physicians, nurses, paramedics, hospital administrators and risk managers
- Collaboration with medical organizations
- Articles in medical journals and trade magazines
- Direct mail to emergency medical professionals
- Outreach efforts by local NMF members to their local hospitals
Under current funding arrangements, most of the materials in the Emergency Medicine Campaign, including the CME accredited video, are available for free to hospital personnel in the United States. Request for a free Kit. The Campaign features a varied collection of information to assist emergency medical personnel in making an accurate and timely diagnosis, including:  Emergency Diagnosis and Treatment of Aortic Dissection, DVD, 54 minutes, CME accredited by Washington University School of Medicine. Comprehensive video on the diagnosis and treatment of aortic dissection, featuring experienced emergency physicians, patients and other experts on Marfan syndrome. Accredited for 2 hours of AMA category 1 credit. Developed for use in medical grand rounds, emergency department meetings or other educational forums and for individual physician viewing. Includes test and forms for submission to obtain credit. (Also available on VHS upon request.)
Marfan Syndrome: Emergency Diagnosis and Treatment of Aortic Dissection, 16 page booklet. A booklet for health care providers that discusses the signs and symptoms of aortic dissection and describes treatment options. Risk factors, such as Marfan syndrome, are also discussed so that emergency health care providers can recognize people who are likely to experience aortic dissection. Developed by the NMF's Professional Advisory Board in cooperation with the New York State Department of Health. Marfan syndrome (5th revised edition), 44 page booklet. Provides a comprehensive description of the disorder, including medical, social and psychological aspects, diagnosis and treatment options. By Reed E. Pyeritz, MD, PhD, and Cheryll Gasner, MN, C/FNP.
Marfan Syndrome and Aortic Dissection. Recognize Them. Save a Life., 17" x 22" Poster. Attractive full-color poster featuring useful photographs of individuals with common physical characteristics of Marfan syndrome. Targeted for non-patient areas in hospital emergency departments.
Marfan Syndrome: Diagnosis and Treatment at a Glance, Bookmark.
Side one features a convenient quick reference list identifying key issues in the areas of orthopedics, ophthalmology and cardiology. Side two features various cases exemplifying the importance of prompt diagnosis and appropriate treatment of aortic dissection. Developed by the NMF and the New York State Department of Health.
Marfan Syndrome: Publications and Videos about Marfan syndrome, Brochure. A complete listing of all videos and publications available from the National Marfan Foundation.
Emergency Diagnopsis and Treatment of Aortic Dissection PowerPoint Slide Presentation, 66 slide set on CD Rom. Comprehensive presentation that includes an overview of Marfan syndrome, photographs illustrating common physical characteristics of the disorder, symptoms of aortic dissection, sample chest x-rays and echocardiograms, diagnostic guidelines, treatment options, surgical indications and follow up care. Developed by members of NMF's Professional Advisory Board.
Marfan Syndrome: The Heart of the Matter, DVD, 20 minutes. This patient-friendly video is targeted to individuals who have been diagnosed with or have questions regarding Marfan syndrome. It provides a general introduction to Marfan syndrome and a discussion of diagnosis and management of the disorder. Featured are interviews with physicians, parents and people living successfully with Marfan syndrome. NMF resources and services are also highlighted. (Also available on VHS upon request.)
In addition to the above information created by the NMF, we recommend the video “Aortic Dissection at Any Age: The Tyler Kahle Story.” This moving and powerful video addresses one family’s story of loss related to Familial Aortic Aneurysm (FAA), and how they have partnered with the hospital to prevent missed aortic dissection in the future. This video was produced by Methodist Hospital in Omaha, NE.
The Emergency Medicine Campaign has been generously supported by the Jonathan Larson Fund of the NMF. Jonathan Larson, Tony Award-winning creator of the hit Broadway Musical RENT, died tragically of a misdiagnosed aortic dissection after visiting two different hospital emergency departments in the days before his death. He did not know he had Marfan syndrome, although he had many physical characteristics that should have alerted hospital personnel of the possibility. The NMF's Emergency Medicine Campaign was created to prevent this type of tragedy from occurring in the future.
Under current funding arrangements, most of the materials in the Emergency Medicine Campaign, including the CME accredited video, are available for free to hospital personnel in the United States. Click here to complete a request for a free Kit.
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