At the National Marfan Foundation, we are committed to protecting your privacy. We firmly believe that electronic security and privacy are necessary for the continued success of the Internet. In support of this, we only use the personal information that you provide to create a more personalized and enjoyable experience for you.
All information provided is only used to provide personalized content and services. Any account information you supply will be used only to process requested commerce transactions or to contact you regarding a specific transaction. The National Marfan Foundation may also use this information in order to generate aggregate reports that help us determine how to improve our users experience. This data is anonymous and does not contain any personally identifiable information.
The National Marfan Foundation will not disclose your user information to any outside organization without your consent. However, the National Marfan Foundation may disclose user information to the government and/or third parties when we have reason to believe that disclosure of such information is necessary to identify or bring legal action against someone who may be violating our Terms and Conditions or otherwise causing harm to the National Marfan Foundation or anyone who could be victimized by such activities, and where otherwise required by law or by legal process.
Unless you choose to opt out in accordance with the choice/opt-out procedures below, we may add your name and email address to the National Marfan Foundation mailing list. The mailing list may be shared with National Marfan Foundation Chapters, established Support Groups and local Network Groups. Such local groups may use the mailing list to (i) inform you of official local National Marfan Foundation group meetings, (ii) solicit membership in the approved local National Marfan Foundation group, (iii) encourage support of, or participation in, National Marfan Foundation activities (e.g., the Annual Conference), National Marfan Foundation legislative work or the National Marfan Foundation Research Drive, or (iv) solicit dues for the local chapter.
We may also use your contact information to e-mail you newsletters that inform you of upcoming events within the National Marfan Foundation.
WEB PRIVACY POLICY
About Your Privacy
Your privacy is important to us. The following explains our online information practices and the choices you can make about the way your information is collected and used.
Should you have a question relating to our privacy policy and practices - or wish to review or correct any personal information we may have on file for you - please contact us by:
Email: webmaster@marfan.org
Phone: (516) 883-8712
Fax: (516) 883-8040
Mail:
National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
What information do we collect? How do we use it?
When you enter into a transaction with us (registering for an event, buying a product, or seeking information), we may need to know specific information in order to process your request.
Our site's forms may require you to give us contact information (like your name, e-mail and address). We may use the contact information from these registration and survey forms to send you information about other programs or events of National Marfan Foundation. You may opt-out of receiving future mailings. See the choice/opt-out section below.
When you order products or services from our site, we need to know your name, e-mail address, mailing address, credit card number, and expiration date. This allows us to process and fulfill your order and to notify you of your order status. For more details, see the section below about online security.
We may use the information we collect to notify you about important changes to the site, new services or features offered by the National Marfan Foundation, and special offers and information we think you will find valuable. If you would rather not receive this information, please contact us through one of the channels identified in the choice/opt-out section.
We also collect anonymous, non-identifiable information about visitors. When you visit our site, our server automatically records your domain (service provider), operating system and web browser type/version as well as the time and date of your visit on a particular page. The information automatically recorded by our server is used only for statistical purposes so that we can manage our site and better serve our visitors. Our server does not and cannot record identifiable information such as your e-mail address.
Cookies
"Cookies" are small pieces of information that are stored by your browser on your computer's hard drive. Our cookies do not contain any personally identifying information. Most web browsers automatically accept cookies, but you can usually adjust your browser to prevent them. This could limit your ability to use certain features on our site, however.
Our site uses cookies to uniquely identify users' machines so that we can monitor site usage, traffic and trends. Cookies also may be used for features such as keeping track of the contents of a shopping cart or helping to deliver more personalized content.
Online Security
When you are asked to provide personal, private and/or financial information (such as a credit card number), we use state-of-the-art security to safeguard your data. The secure server software, SSL (secure sockets layer), encrypts or encodes all information you enter before it is sent to us. Furthermore, all of the customer transactional data we collect is protected against unauthorized access with the use of digital certificates. Digital certificates for the National Marfan Foundation are issued by RSA Data Security, Inc., a trusted provider. To learn more about our online security, simply click the "security" icon (usually a padlock) at the bottom of your browser window.
Does National Marfan Foundation disclose the information it collects to third parties?
The National Marfan Foundation does not sell, trade, or rent your personal information to others.
Choice/Opt-Out
Our site provides users the opportunity to opt-out of receiving communications from the National Marfan Foundation. To request that you not receive particular communications, please send an e-mail to webmaster@marfan.org. Please allow up to five business days for your request to be fulfilled.
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