MARFAN CLINICAL TRIAL ENROLLMENT SITES

Belgium
Ghent University
Ghent, Flanders, Belgium
PI: Dr. Bart Loeys
Coordinator: Sylvia De Nobele
Phone Number: 32-9-332.36.03
E-mail address:  sylvia.denoble@ugent.be
 
Canada
Hospital For Sick Children
Toronto, Ontario, Canada
PI: Dr. Brian McCrindle
Coordinator:  Liz Radojewski, RN
Phone Number: 1-866-613-7778
Email: elizabeth.radojewski@sickkids.ca

Toronto General Hospital - UHN
Toronto, Ontario, Canada
PI: Dr. Tim Bradley
Coordinator: Liz Radojewski, RN
Phone Number: 1-866-613-7778
Email: elizabeth.radojewski@sickkids.ca

California
Cedars-Sinai Medical Center
Los Angeles, CA
PI:  David Rimoin, MD, PhD
Coordinator: Mitchel Pariani, MS
Phone Number: 310-423-9861
Email: Mitchel.Pariani@cshs.org

Stanford University
Stanford, CA
PI: Dr. David Liang
Coordinator: Elizabeth Merkel, RN
Phone Number: 650-736-0644
E-mail address: merkel@stanford.edu

UCSD School of Medicine- Rady Children’s Hospital
San Diego, CA
PI: Paul Grossfeld, MD
Coordinator: Terri McLees-Palinkas, MS,CCRC
Phone Number: 858-966-8066
Email address: tmclees@rchsd.org

Illinois
Children’s Memorial Hospital Chicago
Chicago, IL
PI: Luciana Young, MD
Coordinator: Megan Domenico
Phone Number: 773-880-8331
Email: mdomenico@childrensmemorial.org

Maryland
Johns Hopkins University
Baltimore, MD
PI: Dr. Hal Dietz
Coordinator: Mary Rykiel, BSN
Johns Hopkins University
Baltimore, MD
Phone Number: 410-502-2014
E-mail address: mrykiel1@jhmi.edu

Massachusetts
Children's Hospital Boston
Boston, MA
PI: Dr. Jane Newburger and Dr. Ron Lacro
Coordinator: Jill Handisides, RN, BSN
Phone Number: 617-355-5486
E-mail address: jill.handisides@cardio.chboston.org

Minnesota
Children’s Hospital & Clinic
Minneapolis, MN
PI: Mary Ella Pierpont, MD, PhD
Coordinator: Erin Olson
Phone Number: 612-813-7737 
Email: erin.olson@childrensmn.org

Missouri
Washington University in St. Louis
St. Louis, MO
PI: Dr. Angela Sharkey and Dr. Alan Braverman
Coordinator: Cheryl Rainey
Phone Number: 314-454-6147
E-mail address: rainey_c@kids.wustl.edu

New York
Children's Hospital of New York
New York, NY
PI Name: Dr. Daphne Hsu
Coordinator: Rosalind Korsin, RN
Phone Number: 212-342-0524
E-mail address: rk271@columbia.edu

Mt. Sinai Hospital
New York, NY
PI: Dr. Bruce Gelb
Coordinator: Tejani (TJ) Mendiz-Ramdeen, MS
Phone Number: 212-241-6012
E-mail address: Tejani.Mendiz-Ramdeen@mssm.edu

New York Presbyterian Hospital/Weill Cornell Medical Center
New York, NY
PI Name: Drs. Mary Roman and Dick Devereux
Coordinator: Rosalind Korsin, RN
Phone Number: 212-342-0524
E-mail address: rk271@columbia.edu

North Carolina
Duke University Medical Center Consortium
Durham, NC
Winston Salem, NC
Greenville, NC

Durham
Duke University Medical Center
Coordinator: Ming Xu, RN, MSN
Phone Number: (919) 668-6352
E-mail address: mingfen.xu@duke.edu

Winston Salem
Wake Forest University Baptist Medical Center
PI: Dr. Wesley Covitz
Coordinator: Kari Crawford, MS, APRN, BC, CPNP-AC
Phone Number: 336-713-2228
E-mail address: kcrawfor@wfubmc.edu

Greenville
East Carolina University
PI: Dr. Charlie Sang
Coordinator: Lori Jo Sutton, AAS, CCRC
Phone Number: 252-744-2161
E-mail address: suttonlo@ecu.edu

Ohio
Cincinnati Children's Hospital
Cincinnati, OH
PI: Dr. Woody Benson
Coordinators: Michelle S. Hamstra and Kathryn Hogan
Phone Number: 513-803-1153
E-mail address: cardiologyresearchteam@cchmc.org

Pennsylvania
Children's Hospital of Philadelphia
Philadelphia, PA
PI: Dr. Victoria Vetter and Dr. Stephen Paridon
Coordinator: Agbenu Z. Ejembi RN, BSN
Phone Number: (267) 426-9272
E-mail: ejembia@email.chop.edu

Children’s Hospital of Pittsburgh
Pittsburgh, PA
PI: Steven A. Webber, MBChB, MRCP
Coordinator: Kevin Stiegler, RN, CRC
Phone Number: 412-692-6516
E-mail address: kevin.stiegler@chp.edu

University of Pennsylvania
Philadelphia, PA
PI: Dr. Reed Pyeritz
Coordinator: Agbenu Z. Ejembi RN, BSN
Phone Number: (267) 426-9272
E-mail: ejembia@email.chop.edu

South Carolina
Medical University of South Carolina
Charleston, SC
PI: Dr. J. Philip Saul
Coordinator: Patricia Infinger, CCRP
Phone: 843-792-7857
E-mail: infingep@musc.edu

Tennessee
Vanderbilt University Medical Center
Nashville, TN
PI: Larry Markman, MD
Coordinator: Cheryl Kinnard, RN, CCRC
Phone Number: 615-343-2880
E-mail address: cheryl.kinnard@vanderbilt.edu

Texas
Texas Children's Hospital
Houston, TX
PI: Dr. Jeff Towbin
Coordinator: Hugo Martinez
Phone Number: 832-826-5667
E-mail address: hrmartin@bcm.tmc.edu

Utah
Primary Children's Medical Center
Salt Lake City, UT
PI: Dr. Angela Yetman
Coordinator: Marian Shearrow
Phone Number: 801-662-5487
E-mail address: Marian.Shearrow@intermountainmail.org

Primary Children's Medical Center
Salt Lake City, UT
PI: Dr. Angela Yetman
Coordinator: Jun Porter
Phone Number: 801-662-5417
E-mail address: jun.porter@hsc.uthah.edu

Washington
Seattle Children’s Hospital and Regional Medical Center
Seattle, WA
PI: Mark Lewin, MD
Coordinator: Amy Payne
Phone Number: 206-987-5708
E-mail address: amy.payne@seattlechildrens.org