The National Marfan Foundation serves the needs of people with Marfan syndrome and related disorders primarily in the United States. However, some services are available to those outside the U.S. Request a Free Information Packet The National Marfan Foundation (NMF) will send one free information packet, including a copy of our newsletter “Connective Issues” and the booklet “The Marfan Syndrome” by Reed Pyeritz, M.D. and Cheryll Gasner, M.N., to international postal addresses. To request this information on this website, click here, and complete the “Ask a Question” form. (Note: Please present your questions in English. See below for options to find help in other languages.) International Federation of Marfan Syndrome Organizations
You may want to visit the International Federation of Marfan Syndrome Organizations (IFMSO) website, www.marfanworld.org, to find out if there is a Marfan organization in your country, or to find one who may offer information in your native language. Sign-up For Our Free E-mail Network The NMF has a free E-mail Network. We send news about Marfan syndrome, the NMF, events and opportunities to support the foundation through the E-mail network. To sign up for the network, please enter your e-mail address in the sign up box below and click 'Go'.
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