The Volunteer Tool Kit provides resources to help people with Marfan syndrome and related disorders live successfully with their disorder, to plan local fundraisers, and to raise awareness in their communities.
Volunteer Information and Application - everything you need to become a part of our National Volunteer Network
Print Public Service Announcement (PSA) Placement Project - provides ready-to-use advertisements for you to take to your local print media outlets. Great for school or company newsletters, newspapers, and magazines.
Activities Guide - provides fun and exciting ideas to help you plan your very own events or activities
Telephone Support Orientation Manual - a comprehensive manual specifically for Telephone Support Contact volunteers.
Telephone Support Questionnaire - a questionnaire specifically for new Telephone Support Contact volunteers to complete.
Marfan Syndrome Public Awareness Flyer Project - everything you need for a simple public awareness activity to draw attention to Marfan syndrome or your local group through community bulletin boards in your local retail stores
Basketball Poster - public awareness poster (printable on legal paper) highlighting the physical features of Marfan syndrome and urging recognition of these features in athletes
Marfan Memorial Quilt Project - guidelines for submitting a block for the Marfan Memorial quilt remembering loved ones lost to Marfan syndrome
Hospital Interview Form - a simple tool to help you "interview" your local hospital to determine if they have adequate resources to be able to properly diagnose and manage aortic emergencies.
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