Volunteers are the heart of the National Marfan Foundation. Join Team NMF and become part of the team that is:

Join Team NMF Today! Complete the Volunteer Registration form. 

Network Group Chair
Local Network Groups provide support and organize education and awareness events, social events, and fundraisers. Long standing, active Network Groups often become an official NMF Chapter with their own board of directors and bank account. Network Group Chairs are responsible for organizing group meetings, creating commitees and task forces to plan and staff events and communicating regularly with group members about local and National initiatives and resources. Co-chairs are recomended. Full Job Description

Support Group Leader
Support Groups meet for emotional support. Meetings are led similiar to a group counseling session. Support Groups can be organized as a function of a Chapter or Network Group or can operate as a stand-alone group. Qualified volunteer professionals (social workers, psychologists, nurses, genetic counselors, etc.) are encouraged to apply for this volunteer position.  Full Job Description

Community Support Volunteer
Community Support Contacts provide one-to-one peer support to individuals and family members living with Marfan syndrome or a related disorder in their home area. Community Support Contacts provide support via phone and email and must be willing to publicize either their home or cell phone number and email address on the NMF’s website.  Full Job Description

There are many ways volunteers can raise awareness of Marfan syndrome and related disorders and save lives. Awareness projects come in all shapes and sizes. Awareness volunteers can commit to a one time/one day project or event, such as staffing an awareness table or passing out flyers, or commit to an ongoing campaign or larger event such as the Adopt-a-School Program or organizing an educational symposium. Full Job Description

Advocacy Volunteer
You can make a lasting difference in the quality of life for individuals and families living with Marfan syndrome and related disorders by advocating for improved health care policies and educating your legislators about living with a chronic health condition. Full Job Description

Fundraising Volunteer
Plan an event in your community to raise awareness and raise funds needed to sustain and develop lifesaving programs. NMF staff will assist you in determining the right fundraiser for you, provide you with all the necessary information and materials and help you every step of the way to ensure a successful event. Full Job Description 

Join Team NMF Today! Complete the Volunteer Registration form.

Contact the NMF Manager of Volunteer Development 
Contact the Manager of Volunteer Development at 1-800-8-MARFAN ext. 111 or volunteer@marfan.org with inquiries or for more information about joining Team NMF.