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Fact Sheets

"Heart of the Matter" Fact Sheet Series

The Heart of the Matter (HOTM) fact sheet series was created to answer the growing need to provide complex information in a simple but accurate manner.  In keeping with the NMF’s commitment to providing educational materials for everyone from students to physicians, the HOTM series provides information in easy to understand language.

The HOTM series is also perfect to use at community health fairs and information tables.
If you have an idea for a new fact sheet topic, please email it to: programs@marfan.org.
 
En español:

Todas las hojas de datos están disponibles en español.  Ver más abajo. (All of these fact sheets are available in Spanish.  See below).

Spanish Language Fact Sheet on Marfan syndrome from the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)-  ¿Qué es el síndrome de Marfan?

 
 
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Marfan Syndrome: Skeletal Information (Bones & Joints)
 
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Marfan Syndrome: Cardiovascular Information (Heart & Blood Vessels)
 
 
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Marfan Syndrome: Ocular Information (Eyes)
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Marfan Syndrome: Pulmonary Information (Lung)

Marfan Syndrome: Features of the Marfan Lung

Marfan Syndrome: Sleep Apnea

Marfan Syndrome: Spontaneous Pneumothorax

 

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Loeys-Dietz Syndrome Information
 
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