While there is no cure for Marfan syndrome, advances in medical care are helping people live longer and enjoy a good quality of life. Research is also finding new ways to treat people with Marfan syndrome. Most people with Marfan syndrome can work, go to school, and enjoy active hobbies.
It is very important that people with Marfan syndrome get treatment and follow medical advice. One reason is that heart problems can cause sudden death if they are not treated. Early diagnosis means helpful treatment can begin early in life. Physical activity guidelines for people with Marfan syndrome should not play active team sports such as football, soccer, or basketball. They should not lift heavy objects when at work, home or the gym.
With early diagnosis and appropriate management, the life expectancy for someone with the Marfan syndrome is similar to that of the average person.