The National Marfan Foundation, founded in 1981, is a non-profit voluntary health organization dedicated to saving lives and improving the quality of life for individuals and families affected by Marfan syndrome and related disorders.

The Foundation accomplishes these goals through: 

Research-Promoting research to improve diagnosis and treatment and to find a cure through:

• A grant and fellowship program for all Marfan-related disciplines
• Advocacy for federal funding and policies that support the NMF mission
• Medical and Scientific Symposia
• Partnerships with government agencies and other voluntary health organizations 

Education-Providing accurate and up-to-date information about Marfan syndrome and related disorders to:

• Patients and families
• Health care professionals
• The general public

Support Services-Helping individuals and families with Marfan syndrome and related disorders through:

• The NMF Information and Resource Center, which provides access to personalized service through a toll-free information line, 1-800-8-MARFAN, and email
• The National Volunteer Network, consisting of Chapters, Network Groups, Support Groups, and individual volunteers, which carries out the NMF mission at the local level
• The NMF Annual Conference
• The NMF newsletter, Connective Issues
• Our website