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Endovascular Repair in Marfan Syndrome Patients
Endovascular Repair in Marfan Syndrome Patients The Professional Advisory Board of The Marfan Foundation is in agreement with the Expert Consensus Document on the Treatment of Descending Thoracic Aortic Disease Using Endo-Vascular Stent-Grafts (Ann Thorac Surg 2008;85:S1-41) and the American Heart Association (AHA) guidelines entitled “Surgical Management of Descending Thoracic Aortic Disease: Open and Endovascular […]
Marfan Syndrome Diagnosis
Marfan syndrome is a serious condition, and some complications are potentially life-threatening. Advances in medical care have made it possible for people with Marfan syndrome to live a normal lifespan if they are diagnosed and treated properly. What is Marfan syndrome? What causes Marfan syndrome? How is Marfan syndrome inherited? What are the features of […]
Tags: Marfan Syndrome , Patients & Families
Ectopia Lentis Syndrome Fact Sheet
In some families, dislocation of the lens of the eye (ectopia lentis) is the predominant feature that passes from generation to generation. Sometimes, this occurs along with some of the skeletal (bone and joint) features of Marfan syndrome. This combination of features is called ectopia lentis syndrome. What are the characteristics of ectopia lentis syndrome? […]
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