Related Resources
Neonatal Marfan Syndrome Fact Sheet
Neonatal Marfan syndrome (also called infantile Marfan syndrome) is a term used to designate a severe presentation of Marfan syndrome that is evident in early infancy and shows rapid progression during childhood. Importantly, there are no specific criteria for use of this term. As a result, it is difficult to make broad generalizations about the diagnosis, […]
Chirurgie Cardiaque
Les personnes atteintes du syndrome de Marfan présentent souvent des problèmes au niveau du coeur et des vaisseaux sanguins. Ces problèmes peuvent parfois être très graves. La complication la plus fréquente concerne l’aorte (le principal vaisseau sanguin qui transporte le sang du coeur vers le reste du corps). Les valves cardiaques peuvent également être affectées. […]
Tags: Marfan Syndrome , Patients & Families
How to Ask for Help Guides
When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.