Marfan Camps | The Marfan Foundation

Marfan Camps

Marfan Foundation Camps

Summer camps are a rite of passage for many children -- where they can learn independence and grow in a safe environment. A regular day camp or sleepaway camp is not always practical or safe for children with Marfan or a related disorder. 

Now, children with Marfan and related disorders can have a camp experience in an environment that is safe for them. It also enables them to create connections with other kids who are just like them and form meaningful bonds that can last a lifetime.

Marfan Family Camp offers programming for children, teens ages 5 to 18, and their family. It features traditional summer camp activities, such as archery and paddleboats, arts and crafts, mini-golf and swimming, as well as other standard camp activities that are modified so that all can participate. Parents have the opportunity to get involved in activities with their children and participate in professionally-led support groups.

Marfan Camp Victory offers children and teens, ages 7 to 18, an opportunity to have an independent camp experience. Children participate in all camp activities, such as lake swimming, boating, archery, arts and crafts, dances, campfires, and much more in a safe environment using only therapeutic and adaptive equipment. When your child shares these experiences with their peers, they create memoires which change them forever.

Both Marfan camps includes accommodations and all meals. A Marfan-knowledgeable nurse is onsite throughout.

Both of my kids (the one who has Marfan and the one who doesn’t) had a blast! Hadley liked meeting other girls her age with Marfan. As a parent, it was great at night to see that she wasn't the only one who needed to take medicine - something we often try to do discretely. Becky Gunn, of Atlanta

Of course one can make friends at any sort of camp. But, to make a friend who understands Marfan is something Bobby wouldn't get anywhere else, except perhaps at conference. – Jay Elliott, Bobby’s dad, of St. Louis

I loved doing things I don't usually get to do, like archery, and it was so fun meeting new friends with Marfan syndrome. No one even asked me why I needed a wheelchair to go long distances! – Cassie Jennings, 10, of Madison, New Jersey

It was important to have camp so that the kids could do things that they might not have had exposure to if they can't go to a traditional camp. Learning new skills and trying new activities is not only fun, but shows the kids that they may have talents or interests they didn't know about. It was also a great place for the kids to bond and talk to each other in a fun, relaxing atmosphere. The parents also got to talk and learn from each other and have those conversations that only other parents of kids with Marfan can truly understand. Alix Jennings, Cassie’s mom

Future dates of Marfan Family Camp and Camp Victory, and links to registration, will be posted here when they are avalable.