Know the Signs, Fight for Victory

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May 2024

A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
13 May
Virtual
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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
14 May
6:00 pm - 7:00 pm
Virtual
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Walk For Victory – Pittsburgh

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
18 May
12:00 pm - 3:00 pm
Highland Park, (Rhododendron Shelter)
Lake Drive, Pittsburgh, PA 15206
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Walk For Victory – Denver

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
19 May
12:00 pm - 3:00 pm
Berkeley Lake Park
4601 W 46th Ave Denver, CO 80212
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Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.
20 May
7:30 pm - 9:00 pm
Zoom
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HeartWorks NYC

Your presence will ignite the sparkle at the iconic Rainbow Room on May 21 when you attend the Marfan Foundation’s signature event, the HeartWorks Gala in Manhattan. You’ll help save and improve the lives of people impacted by genetic aortic and vascular conditions while you enjoy a brilliant evening of cocktails, dinner, and entertainment amid the company of […]
21 May
The Rainbow Room NYC
30 Rockefeller Plaza 65th Floor, New York, NY 10112
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Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
21 May
7:00 pm - 9:00 pm
Virtual
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VEDS Parents

If you are a parent of a child with VEDS, we invite you to join other parents to discuss the challenges of raising a child with this condition. This group will be hosted by Jan Lynch, RN, director of The Marfan Foundation’s Help & Resource Center, and Abby DeLong, VEDS parent and patient advocate.
22 May
8:00 pm
Virtual
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