Note: If you are currently experiencing an emergency or crisis, you should contact your personal doctor, call 911, or go to the nearest emergency room.
Following your doctor’s recommendations for medication, monitoring, and physical activity gives you the best chance of avoiding a serious complication of Marfan syndrome. Still, there are no guarantees. That’s why it’s important for you to learn about the medical problems that could arise and require immediate medical treatment.
To help prepare you for these situations, we recommend that you complete our Emergency Preparedness Kit, which we created specifically for people with Marfan syndrome and related disorders. It includes our Emergency Alert Card which you can download and carry in your wallet. You can click below to download them.