The Marfan Foundation

Know the signs. Fight for victory.

The Marfan Foundation’s Heartworks Gala, held each year in Manhattan, is the Foundation’s largest fundraising event. It has raised more than $9 million since its inception in 2000. Karen Murray, Marfan Foundation Board Member and President of VF Sportswear, created the event in 1998 as a small cocktail reception called The Marfan Artists Project. The evening featured art exhibits and performances, as well as an art auction to benefit our support, awareness, and medical education programs that create a brighter future for people with Marfan syndrome and related disorders.

Heartworks St. Louis, which originated in 2009, is hosted by Alan and Rebecca Braverman. Dr. Braverman, Alumni Endowed Professor in Cardiovascular Diseases and Director of the Marfan Syndrome Clinic at Washington University School of Medicine and Barnes-Jewish Hospital, lost his father to Marfan syndrome and has a brother and nephew who are affected by the condition. St. Louis has one of the nation’s largest Marfan syndrome clinics and collaborates with physicians and scientists nationwide on research on Marfan syndrome and related disorders. Over the past five years, Heartworks St. Louis has raised substantial funds to help provide support, awareness, and medical education programs that create a brighter future for people living with Marfan syndrome and related disorders.

Heartworks Westchester originated in 2008 to benefit The Marfan Foundation. This fundraiser is held each year in honor of Sydney Lerman, the young daughter of Barbara and Jonathan Lerman of Chappaqua, who was born with severe characteristics of Marfan syndrome. Since its inception, the gala has raised more than a million dollars to create a brighter future for people living with Marfan syndrome and related disorders. Your continued support has enabled us to champion research that has increased the understanding of Marfan syndrome and enhanced treatments and surgeries. Your support has also been instrumental in the expansion of our education programs that care for and support our patient community.