The Marfan Foundation

Know the signs. Fight for victory.


Heartworks St. Louis was a great success, raising substantial funds for our support, awareness, and medical education programs that create a brighter future for people living with Marfan syndrome and related disorders. We were delighted to recognize several people in the St. Louis community for their contributions: Hero with a Heart recipient Dr. Angela M. Sharkey; Corporate Champions Noémi & Michael Neidorff; and Community Champions Sharon & Doug Aach. The Foundation is grateful to co-hosts Dr. Alan & Rebecca Braverman for their continuing dedication to our mission. We are also grateful to the gala committee, our sponsors, and everyone who contributed to the success of the evening. To see photos from the event this year, click here.

The 7th Annual Heartworks St. Louis Gala is scheduled for March 7, 2015. Look for information here in early 2015.


Heartworks St. Louis, which originated in 2009, is hosted by Alan and Rebecca Braverman. Dr. Braverman, Alumni Endowed Professor in Cardiovascular Diseases and Director of the Marfan Syndrome Clinic at Washington University School of Medicine and Barnes-Jewish Hospital, lost his father to Marfan syndrome and has a brother and nephew who are affected by the condition. St. Louis has one of the nation’s largest Marfan syndrome clinics and collaborates with physicians and scientists nationwide on research on Marfan syndrome and related disorders. Over the past five years, Heartworks St. Louis has raised substantial funds to help provide support, awareness, and medical education programs that create a brighter future for people living with Marfan syndrome and related disorders.

The highlight of the evening is the presentation of our Hero with a Heart Award. This award is presented to individuals who have played a significant role in helping the Foundation achieve victories for our community. Previous award recipients are Dr. Kevin Blinder, Dr. Keith Bridwell, Dr. Nicholas Kouchoukos, Dr. Lawrence Lenke, Dr. Marc Moon, and Dr. Gregorio Sicard.

This year, we are proud to honor Dr. Angela M. Sharkey, Professor of Pediatrics and Associate Dean of Faculty Affairs and Professional Development at Saint Louis University School of Medicine for her tremendous clinical care of patients with Marfan syndrome and related disorders.

We are also delighted to honor Noémi and Michael Neidorff with our Corporate Champion Award and Sharon and Doug Aach with our Community Champion Award. Their steadfast support of Heartworks St. Louis has allowed us to champion research that led to a greater understanding of the cause of Marfan syndrome, as well as advances in treatments and surgeries that directly benefit patients.

The 6th annual Heartworks St. Louis gala features dancing and live music provided by the Groovethang, as well as a seated dinner and awards presentation. It takes place in the Grand Ballroom at the Four Seasons Hotel St. Louis.