The Marfan Foundation

Know the signs. Fight for victory.

Heartworks St. Louis, which originated in 2009, is hosted by Alan and Rebecca Braverman. Dr. Braverman, Alumni Endowed Professor in Cardiovascular Diseases and Director of the Marfan Syndrome Clinic at Washington University School of Medicine and Barnes-Jewish Hospital, lost his father to Marfan syndrome and has a brother and nephew who are affected by the condition. St. Louis has one of the nation’s largest Marfan syndrome clinics and collaborates with physicians and scientists nationwide on research on Marfan syndrome and related disorders.

Over the past six years, Heartworks St. Louis has raised substantial funds to help provide support, awareness, and medical education programs that create a brighter future for people living with Marfan syndrome and related disorders.

This year, we are proud to honor Patrick J. Geraghty, MD, FACS, Associate Professor of Surgery and Radiology, and Co-Director of the Limb Salvage Center at Washington University School of Medicine, with our Hero with a Heart Award for his outstanding care of patients with vascular surgical complications of connective tissue disorders and his contributions to clinical research on Marfan syndrome and related disorders.

We are presenting our first Distinguished Research Award to Robert Mecham, PhD, Alumni Endowed Professor of Cell Biology and Physiology and Professor of Medicine, Pediatrics, and Biomedical Engineering at Washington University School of Medicine , for his lifetime of work dedicated to understanding elastic tissue function and basic mechanisms involving connective tissue, paramount in the understanding of disorders such as Marfan syndrome and related diseases.

We are also honoring Ron & Pam Rubin as Community Champions for their ongoing and steadfast support. Because of their efforts, we can further champion research to advance the understanding of Marfan syndrome and related disorders, as well as investigate new treatments and surgeries that directly benefit patients.

Isaiah Austin, Baylor University basketball standout, who was diagnosed with Marfan syndrome before the 2014 NBA draft, will be our special guest.

The 7th Annual Heartworks St. Louis gala features dancing and live music provided by Groovethang, as well as a seated dinner and awards presentation. It takes place in the Grand Ballroom at the Four Seasons Hotel St. Louis.

To see photos from the event last year, click here.