| The Marfan Foundation


With record breaking attendance, a spectacular silent and live auction, and an enthusiastic audience, Heartworks raised over $1.2 million for the Marfan syndrome and related disorders community.

Donations and pledge payments may be made by clicking on the Event Tickets and Donations button. See you next year!


We are pleased to announce our 2017 honorees:

Heroes with a Heart Award Honorees

Dr. Joseph Coselli
Professor of Surgery, Baylor College of Medicine
Sinclair Li
Executive Vice President, CBRE Inc.

Inspiration of Excellence Award

This year The Marfan Foundation will be presenting its first ever Inspiration of Excellence Award to:

Karen Murray
Chief Executive Officer, Sequential Brands Group

History Of Heartworks NYC

Heartworks New York City is hosted by Karen Murray, CEO of Sequential Brands Group, who created the event in 1998 as a small cocktail reception called The Marfan Artists Project.  Since its inception, the event has grown to become the largest fundraising event for The Marfan Foundation, raising over $12 million to support lifesaving research, education, and community-based initiatives.

Karen Murray became involved with The Marfan Foundation in 1996 after her son was diagnosed with Marfan syndrome.  Since then, she has been a tireless advocate for those affected, and now serves as the Chairman of the Board of Directors of The Marfan Foundation, in addition to serving as the Corporate Host of Heartworks New York City. 

Each year, Heartworks New York City honors leaders in the medical, philanthropic, and corporate world for their contribution to the Marfan syndrome and related disorders community.  A partial list of past honoress include Dr. Wayne Isom, Dr. Valentin Fuster, Randy Falco, Ann Reinking, Merck & Company, Jeffrey Le Sage, and Dr. Hal Dietz.


Who We Are
The Marfan Foundation is a nonprofit organization that fights for victory over Marfan syndrome and related disorders.  Marfan syndrome is a life-threatening genetic disorder that most severely affects the heart, blood vessels, and eyes so we do everything possible, including research, advocacy, and education to make sure people can live longer, fuller lives. Alarmingly, medical experts say that half of those with Marfan syndrome are not diagnosed and are at risk.
What We Do
  • Fund the most innovative research to ensure people with Marfan syndrome and related disorders live longer, fuller lives.
  • Provide educational resources to physicians, patients, and the public to increase early diagnosis and ensure life-saving treatments.
  • Serve families, healthcare providers, and the public through educational programs and our Help & Resource Center. 
We will not rest until we’ve achieved victory---a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.


Questions?  Please contact:

The Marfan Foundation
Attention:  Deborah Goodman
National Director, Social Events
22 Manhasset Avenue
Port Washington, NY 11050
Tel:  516-883-8712 X154
Fax:  516-883-8040
Email:  dgoodman@marfan.org