| The Marfan Foundation

The Marfan Foundation

Know the signs. Fight for victory.

Who We Are

The Marfan Foundation is a nonprofit that fights for victory over Marfan syndrome and related disorders. Marfan syndrome is a life-threatening genetic disorder that most severely affects the heart, blood vessels, and eyes so we do everything possible, including research, advocacy, and education to make sure people can live longer, fuller lives.

What We Do

  • Fund the most innovative research to ensure people with Marfan syndrome and related disorders live longer, fuller lives.
  • Provide educational resources to physicians, patients, and the public to increase early diagnosis and ensure life-saving treatments.
  • Serve families, healthcare providers, and the public through educational programs and our Help & Resource Center.

We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.

History Of Heartworks

Currently in its 16th year, Heartworks is The Marfan Foundation’s premier annual event, attracting attendees from the Marfan syndrome and related disorders community, as well as business leaders in the fashion, media, real estate, and financial industries, and medical professionals from across the country who help raise critically-needed funds to support our fight for victory over Marfan syndrome and related disorders.

Each year at Heartworks, leaders in the medical, corporate, and Marfan communities are honored with our Hero with a Heart Award. This award is presented to individuals who have played a significant role in helping the Foundation achieve victories for people living with Marfan syndrome and related disorders. Past honorees include Ann Reinking, Tony Award-winning choreographer and Broadway star; Susan and Randy Falco, former Board Member and President & CEO of Univision Communications Inc., respectively; Victor McKusick, MD, who is known as the Father of Medical Genetics; Merck; Jeff LeSage, U.S. Vice Chairman -Tax, KPMG LLP; and St. Jude Medical.

Heartworks also features a great silent auction filled with unforgettable experiences such as movie premiere passes, tickets to the World Series and Super Bowl, a condo in Sun Valley, ID, a Turks & Caicos getaway, Canyon Ranch Spa vacation, a weekend in Bermuda, and much more! A million-dollar event, Heartworks has been hosted by such high profile emcees as NBC’s Brian Williams, Hoda Kotb, and Ann Curry, and Tony Award Winning Actor James Naughton. The event has had a great group of entertainers, including Megan Hilty, Patti Lupone, Mandy Patinkin, the Broadway cast of Rent, and Jennifer Holliday.

In addition to the signature Manhattan gala, Heartworks is also held in St. Louis.

Thursday, April 14, 2016

Cipriani 42nd Street
110 East 42nd Street
New York City

Cocktails & Silent Auction
5:45 PM

Dinner, Awards & Entertainment
6:45 PM

Cocktail Attire

The Marfan Foundation
Attention: Diane Serenita
Director of Special Events
22 Manhasset Avenue
Port Washington, NY 11050
Tel: 516.883.8712 ext. 137 - 800.8.MARFAN ext. 137
Fax: 516.883.8040
Email: dserenita@marfan.org