Our longstanding commitment to research has helped drive progress in understanding, diagnosing, and treating Marfan syndrome, Loeys-Dietz syndrome (LDS), Vascular Ehlers-Danlos syndrome (VEDS), and related conditions. We collaborate with leading scientists and healthcare professionals to advance discoveries that improve diagnosis, treatment, and care.

Since 1986, the Marfan Foundation has invested more than $24 million in research through grants and other strategic initiatives. Our research grant program has helped grow the community of researchers studying these conditions and has contributed to discoveries, including the identification of additional genetic aortic and vascular conditions related to Marfan syndrome.

We also advocate for increased government investment in research and bring researchers, healthcare professionals, government agencies, and other health organizations together through conferences, symposia, and other opportunities to share knowledge and accelerate progress.

Because advances in one area can benefit the broader genetic aortic and vascular condition community, we remain committed to supporting research that improves health outcomes and quality of life for individuals and families.