| The Marfan Foundation

The Marfan Foundation

Know the signs. Fight for victory.

LATEST NEWS

March 26, 2014

PORT WASHINGTON, NY, March 26, 2014 – The Marfan Foundation is pleased to announce the addition of two experts on Marfan syndrome and related disorders to its Professional Advisory Board: Dr.

January 29, 2014

It was exactly 20 years ago that I embarked on the most rewarding journey in my professional life, when Priscilla Ciccariello, Chair Emeritus, asked me to serve as President & CEO of The Marfan Foundation.

December 4, 2013
In the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than thirty years later, due to early diagnosis, new medications, and advances in surgery, the life expectancy for people with Marfan syndrome was in the 70s, nearing the life expectancy of the general population.
November 1, 2013

The 14th Annual Tommy Tant Memorial Surf Classic presented by Nautica returns to Flagler Beach, FL, on November 9-10, 2013, and will again benefit The Marfan Foundation.

October 9, 2013

One in five people with Marfan syndrome had some form of surgery before they were diagnosed with the potentially life-threatening condition, according to a survey of 1277 people conducted by The Marfan Foundation from July 21-August 18, 2013.

Blood Test
September 16, 2013
Team of investigators develop an innovative blood test which provides faster, simpler way for emergency room doctors to diagnose and monitor potentially deadly aortic aneurysms dissections.
September 2, 2013
A study from The Netherlands found that a common drug that is used to treat high blood pressure in the general population can significantly reduce a dangerous and frequently fatal cardiac problem in patients with Marfan syndrome.
August 2, 2013

Two-time Tony nominee Daphne Rubin-Vega is speaking out for the The Marfan Foundation, urging the Hispanic community to learn about Marfan syndrome, a life-threatening genetic disorder that affects one in 5,000 men and women of every race and ethnicity. Tragically, experts estimate that nearly half of the people who have Marfan syndrome don't know it. Without proper diagnosis and treatment, they are at high risk for aortic dissection and sudden death.

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