The Marfan Foundation announced today its collaboration with the American Heart Association (AHA) on the pilot program of My Research Legacy™, a secure online network that allows people to donate their lifestyle and genetic data and participate in
The Marfan Foundation’s fact sheet about the heart and blood vessels in Marfan syndrome has been expanded to include new information for patients and families.
In recognition of the significant contributions of volunteers throughout the country, The Marfan Foundation presented several awards at the 32nd Annual Conference.
The Marfan Foundation will hold its 32nd Annual Conference in Rochester, MN, on August 4-7. The conference, organized in collaboration with Mayo Clinic, will bring more than 600 people with Marfan syndrome and related disorders to the Med City.
The Marfan Foundation’s sound fiscal management practices and commitment to accountability and transparency have earned it a 4-star rating from Charity Navigator, America’s largest independent charity evaluator.
The Marfan Foundation is deeply offended by the highly acclaimed HBO program, VEEP, and its writers and producers, for incorporating “Marfan syndrome” into the script of the May 1 episode as an insult to one of the characters of the program.
The Marfan Foundation announced today that it raised more than $1.2 million last night at its 16th Heartworks gala in New York City.
Daphne Rubin-Vega, Fredi Walker-Brown, and Tony Award winner Wilson Heredia lead a group of two dozen singers who appeared in various productions of the award-winning show, RENT, in a tribute to playwright Jonathan Larson as he is posthumously awa
Earlier this week, Maryland Congressman Chris Van Hollen and Congressman Mike Fitzpatrick (R-PA) were joined by 24 House colleagues in urging the U.S.
The Marfan Foundation is honoring the Weill Cornell Medicine Cardiac Team – Drs. Richard Devereux, Leonard Girardi, and Mary Roman – with a Hero with a Heart Award at its Heartworks gala on April 14.