The Marfan Foundation

Know the signs. Fight for victory.

LATEST NEWS

August 3, 2015

The Marfan Foundation today announced that it has teamed up with WebThriftStore.com to launch an online “thrift store” where its supporters can sell their lightly used goods to benefit The Marfan Foundation.

July 20, 2015

Northwestern Medicine and Ann & Robert H. Lurie Children’s Hospital of Chicago are co-hosting The Marfan Foundation’s 31st Annual Family Conference on August 6-9, 2015 in Chicago.

June 22, 2015

The Marfan Foundation announced today that Isaiah Austin is the featured speaker at the Foundation’s 31st Annual Family Conference in Chicago.

June 2, 2015

Due to sequestration (spending cuts) and flat budgets in recent years, the National Institutes of Health (NIH) have lost nearly 25 percent of their purchasing power.

May 1, 2015

The Marfan Foundation has just published new cardiac management recommendations for the heart and blood vessels in Marfan syndrome. Changes were made in light of advances in the field, including the results of the losartan vs.

April 20, 2015

The Marfan Foundation announced today that it raised more than $1.2 million last night at its 15th Heartworks Gala in New York City.

March 11, 2015

The Marfan Foundation announced today that it is honoring Isaiah Austin, the former Baylor University basketball star, and Carolyn Levering, Emeritus CEO of The Marfan Foundation, with its 2015 Hero with a Heart Award.

February 20, 2015

The Marfan Foundation today announced the appointment of Michael L. Weamer as its President and Chief Executive Officer. The Marfan Foundation is the only nonprofit organization in the U.S.

February 3, 2015

Isaiah Austin, the NBA hopeful out of Baylor University who was diagnosed with Marfan syndrome just prior to the NBA draft in June, is featured in The Marfan Foundation’s new pu

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