| The Marfan Foundation

The Marfan Foundation

Know the signs. Fight for victory.

LATEST NEWS

May 3, 2016

The Marfan Foundation is deeply offended by the highly acclaimed HBO program, VEEP, and its writers and producers, for incorporating “Marfan syndrome” into the script of the May 1 episode as an insult to one of the characters of the program.

April 15, 2016

The Marfan Foundation announced today that it raised more than $1.2 million last night at its 16th Heartworks gala in New York City.

March 29, 2016

Daphne Rubin-Vega, Fredi Walker-Brown, and Tony Award winner Wilson Heredia lead a group of two dozen singers who appeared in various productions of the award-winning show, RENT, in a tribute to playwright Jonathan Larson as he is posthumously awa

March 3, 2016

Earlier this week, Maryland Congressman Chris Van Hollen and Congressman Mike Fitzpatrick (R-PA) were joined by 24 House colleagues in urging the U.S.

February 4, 2016

The Marfan Foundation is honoring the Weill Cornell Medicine Cardiac Team – Drs. Richard Devereux, Leonard Girardi, and Mary Roman – with a Hero with a Heart Award at its Heartworks gala on April 14.

January 22, 2016

On January 13, The Marfan Foundation was highlighted on Capitol Hill with a most impressive Congressional Briefing.

January 8, 2016

The Marfan Foundation announced today the launch of Marfan DX, a mobile phone application to aid healthcare professionals in the diagnosis of Marfan syndrome and related disorders.

December 16, 2015

The Marfan Foundation is asking its Marfan syndrome and related disorders community to ask their House Representative’s and Senator’s staff on Capitol Hill to

December 7, 2015

The Marfan Foundation has named Susan Leshen, LCSW, the senior director of patient and program services and volunteer leadership, a new position at the Foundation.

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