| The Marfan Foundation

LATEST NEWS

July 20, 2017
The Marfan Foundation’s strong financial health and commitment to accountability and transparency have again earned it a 4-star rating, the top distinction, from Charity Navigator.
June 14, 2017
Save the date for Regional Symposiums in Detroit, Birmingham (AL), and Cleveland this Fall.
June 14, 2017
BBB accreditation signifies that The Marfan Foundation is deserving of donor trust as they are a well-run nonprofit organization.
June 8, 2017
The Marfan Foundation lauds the NBA for both screening players entering the draft and prohibiting players with Marfan from participating.
May 22, 2017

The Marfan Foundation will honor Austin Carlile, former lead singer of the band Of Mice & Men, with the Heart of the Matter Award, at its

May 11, 2017

The Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome and related disorders advocate, you are invited to participate as we urge legislators to support responsible healthcare reform.

May 11, 2017

The Marfan Foundation announced today that it raised more than $1.2 million last night at its 17th Heartworks gala in New York City.

April 28, 2017

The Marfan Foundation is pleased to announce the addition of two staff members who will play a direct role with members of our Marfan syndrome and related disorders community.

April 13, 2017

The Marfan Foundation is honoring Karen Murray, the recently named CEO of Sequential Brands Group, with its first Inspiration of Excellence Award at its Heartworks gala on May 10, 2017, at the Grand Hyatt in New York City.

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