The Marfan Foundation

Know the signs. Fight for victory.

About Us

Before our founding in 1981, Marfan syndrome was largely unknown or misunderstood, but our tireless efforts have led to many life-changing advances in our fight for victory over Marfan syndrome and related disorders. We tirelessly advance the research for treatments that save lives and dramatically enhance quality of life for affected people. We provide a supportive community for everyone affected by Marfan syndrome and related disorders. We always have the latest and most accurate information, and we educate everyone—from patients and families to medical professionals and the general public—about Marfan syndrome and related disorders. Click on the links to learn more about us and our life-saving work.

About The Marfan Foundation

The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.

How We Help

We work tirelessly to advance research, serve as a resource for families and healthcare providers, and raise public awareness. Read about our programs and services that advance our mission.


Stay up-to-date on news about Marfan syndrome and related disorders, as well as Foundation news.


We offer a variety of activities throughout the year; some are organized on a national level while others are organized by our volunteers. Learn about educational, social, and networking events in your area.

Staff & Board

Read about the professionals who guide our work, as well as the people who work on a daily basis to make life better for people with Marfan syndrome and related disorders.

Annual Reports & Financials

We are supported by contributions from our members and friends, as well as by individual, corporate, and foundation grants. Read more about our financials here.

Contact Us

We are here to help.