Know the signs. Fight for victory. | The Marfan Foundation

The Marfan Foundation

Know the signs. Fight for victory.

Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.


May 22 The Marfan Foundation to Honor Austin CarlileThe Marfan Foundation will honor Austin Carlile, former lead singer of the band Of Mice & Men, with the Heart of the Matter Award, at its 33rd
May 11 Marfan and Related Disorders Community Invited to Participate in Hill DayThe Marfan Foundation is holding its Lobby Day on Capitol Hill on June 20. As a Marfan syndrome and related disorders advocate, you are invited to
May 11 The Marfan Foundation Raises More Than $1.2 Million at Heartworks Gala to Support Life-Saving Programs and ServicesThe Marfan Foundation announced today that it raised more than $1.2 million last night at its 17th Heartworks gala in New York City. More than 500


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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome and related disorders and help us create a brighter future for everyone living with these conditions.