Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.
|Nov 8||Speakers and Topics Announced for Cleveland SymposiumHear from leading experts on Marfan syndrome and related disorders from the Cleveland Clinic.|
|Nov 1||Survey Results Reveal Greatest Obstacles to Quality of LifePain and physical limitations are the greatest obstacles to quality of life. Read about other challenges to our community.|
|Sep 22||Sydney Lerman Pediatric Hospitality Program is LaunchedThe new Sydney Lerman Pediatric Hospitality Program supports children with Marfan and related disorders who are hospitalized and their families.|
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