Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.
|May 3||The Marfan Foundation is Deeply Offended by VEEP for Using “Marfan Syndrome” as a Disparaging RemarkThe Marfan Foundation is deeply offended by the highly acclaimed HBO program, VEEP, and its writers and producers, for incorporating “Marfan syndrome|
|Apr 15||The Marfan Foundation Raises More Than $1.2 Million at Heartworks Gala to Support Life-Saving Programs and ServicesThe Marfan Foundation announced today that it raised more than $1.2 million last night at its 16th Heartworks gala in New York City. More than 500|
|Mar 29||RENT Cast Members from the Past 20 Years to Perform at New York City Heartworks to Honor Jonathan LarsonDaphne Rubin-Vega, Fredi Walker-Brown, and Tony Award winner Wilson Heredia lead a group of two dozen singers who appeared in various productions of|
Join our email list to get the latest Marfan-related news and updates delivered to your inbox.
SHOW YOUR SUPPORT
Know the signs. Fight for victory.
Join us in the fight for victory over Marfan syndrome and related disorders and help us create a brighter future for everyone living with these conditions.