Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.
|Mar 22||Boston Symposium: Making Life-Changing Connections for Children and TeensOn April 8, 2017, Dr. Ron Lacro, Director, Cardiovascular Genetics Clinic, and Associate in Cardiology, Boston Children's Hospital, Assistant|
|Feb 10||Legislative Action Alert: Urge Responsible Healthcare ReformThe 115th Congress and the incoming administration have made it a priority to “repeal and replace” the Patient Protection and Affordable Care Act (|
|Jan 31||The Marfan Foundation Launches Marfan Awareness Month on February 1 with Multi-pronged #IKNOWMARFAN CampaignSocial media and grassroots events planned to raise awareness of the signs of Marfan and related disorders to increase early diagnosis and enhance|
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