Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.
|Dec 4||New York Times Puts the Spotlight on Progress in Marfan ResearchIn the 1970s, the life expectancy for someone with Marfan syndrome was in the 40s. Less than thirty years later, due to early diagnosis, new|
|Nov 1||14th Annual Tommy Tant Memorial Surf Classic benefits The Marfan FoundationThe 14th Annual Tommy Tant Memorial Surf Classic presented by Nautica returns to Flagler Beach, FL, on November 9-10, 2013, and will again benefit|
|Oct 9||New Survey Finds One in Five Patients Had Surgery Before DiagnosisOne in five people with Marfan syndrome had some form of surgery before they were diagnosed with the potentially life-threatening condition,|
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