The Marfan Foundation

Know the signs. Fight for victory.

Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.


Aug 13 The Marfan Foundation Names New President & CEOThe Marfan Foundation today announced the appointment of John McGrath as its President and Chief Executive Officer. McGrath replaces Carolyn Levering
Jul 14 The Marfan Foundation Announces Cash Money Records CEO Ron Williams and "NBA Draft Pick" Isaiah Austin are New SpokespeopleThe Marfan Foundation announced today that Co-Founder and CEO of Cash Money Records Ronald Williams and former Baylor University basketball standout
Jul 10 The Marfan Foundation Receives RARE Champion of Hope – Collaborations in Advocacy Award from Global GenesGlobal Genes honors the pioneering achievements of individuals andcorporations in the rare disease communityPORT WASHINGTON, NY, July 10, 2014 — The


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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome and related disorders and help us create a brighter future for everyone living with these conditions.