Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.
|May 11||The Marfan Foundation Makes New Healthcare Management Tool Available Free of Charge to the Marfan Syndrome and Related Disorders CommunityCustomized for our community, the app is secure, easy-to-use, portable, and translatable!|
|Apr 24||The Marfan Foundation & Backpack Health Partner to Offer Unique Tech PlatformPartnership creates a new model for how patient advocacy organizations can better support their members through leveraging real-time data.|
|Apr 3||The Marfan Foundation Named Among the 2018 Best Nonprofits to Work ForFor the first time in its 37 year history, The Marfan Foundation has been selected as one of the 2018 Best Nonprofits To Work For. The announcement|
Join our email list to get the latest Marfan related news and updates delivered to your inbox.
SHOW YOUR SUPPORT
Know the signs. Fight for victory.
Join us in the fight for victory over Marfan syndrome and related disorders and help us create a brighter future for everyone living with these conditions.