The Marfan Foundation

Know the signs. Fight for victory.

Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.


Mar 26 The Marfan Foundation Adds Experts to its Professional Advisory BoardPORT WASHINGTON, NY, March 26, 2014 – The Marfan Foundation is pleased to announce the addition of two experts on Marfan syndrome and related
Feb 6 The Marfan Foundation to Honor Angela M. Sharkey, MD, Pediatric Cardiologist, at Heartworks St. Louis, March 1PORT WASHINGTON, NY, February, 6, 2014 – Angela M. Sharkey, MD, Pediatric Cardiologist at SSM Cardinal Glennon Children’s Medical Center and
Jan 29 President & CEO of The Marfan Foundation Announces Two-Year Transition Plan Leading to Her RetirementIt was exactly 20 years ago that I embarked on the most rewarding journey in my professional life, when Priscilla Ciccariello, Chair Emeritus, asked


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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome and related disorders and help us create a brighter future for everyone living with these conditions.