Marfan syndrome is a life-threatening genetic disorder, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related disorders. Knowing the signs of these conditions can save lives. Learn more.
|Dec 6||New Physical Activities Resource Now AvailableThe Marfan Foundation has a new resource featuring physical activity guidelines for people who have Marfan syndrome and related disorders.|
|Nov 8||Speakers and Topics Announced for Cleveland SymposiumHear from leading experts on Marfan syndrome and related disorders from the Cleveland Clinic.|
|Nov 1||Survey Results Reveal Greatest Obstacles to Quality of LifePain and physical limitations are the greatest obstacles to quality of life. Read about other challenges to our community.|
Join our email list to get the latest Marfan related news and updates delivered to your inbox.
SHOW YOUR SUPPORT
Know the signs. Fight for victory.
Join us in the fight for victory over Marfan syndrome and related disorders and help us create a brighter future for everyone living with these conditions.